Often thought of merely as a disease one has never before heard of, rare diseases actually encompass a variety of disorders that are often seen in special needs children. These rare diseases come more into the light on World RARE Disease Day, which is always celebrated on the last day of February. This year, World RARE Disease Day will be celebrated on February 28. Individuals can show their support by wearing denim jeans that day and by proudly displaying the Blue Denim Genes Ribbon. Thousands of events happen around the world on that day and in the days leading up to February 28 to raise awareness of the numerous people who live with a rare disease and for those who care for someone with a rare disease on a daily basis.
This raises the question of what exactly a rare disease is and how it affects people’s daily lives. By definition, a disease in the United States is considered to be rare when fewer than 200,000 individuals in the nation are affected by it at a given time. Scientists have classified over 6,000 rare diseases around the globe. The majority of these are caused by genetics. Sadly, over 50% of those affected are children.
Because the symptoms of the numerous rare diseases vary greatly, these children are often misdiagnosed and many times do not receive the help and education that they need to succeed to the best of their potential. At Newman Aaronson Vanaman, we fight for the right of all of these special education children and are committed to helping them find the educational resources they need with the least restrictions on their freedoms. We fully support World RARE Diseases Day and wish for a day when scientists and researchers will find cures for all of these diseases. Until then, we invite concerned parents to reach out to us for legal help for their special needs children and for help working with Individualized Educational Plans and other special education necessities.